Our mission

Our mission

Making the decision to live your last moments at home

Sometimes illness resists all cures, despite medicine’s best efforts. When that happens, any person who is terminally ill, whether that person is an adult or a child, ought to be able to spend their last days in the place where they’ve always lived, with their family and friends there to support them. In fact, that’s what more and more Canadians want. It’s what most people want in other industrialized countries, too.
That’s what home palliative care is all about. It’s intended to relieve pain and other physical symptoms, and to ease suffering – so that a terminally ill patient can live their last moments in the privacy and comfort of their own home, surrounded by loved ones.
Palliative care is made possible through our CLSC home care service programs, in cooperation with the Fondation Jacques-Bouchard and its many volunteers, and other associations as well.

Interdisciplinary Team

CLSC interdisciplinary home care team
Palliative care physicians, nurses, social workers, psychologists, occupational therapists, physiotherapists and other caregivers handle the patient’s assessment and intake procedure, then decides and organizes the care plan within limits authorized for CLSCs. The team relies on the foundation to round out the full complement of services :

  • - Patient at home, surrounded by loved ones
  • - Wishes to live their last moments in the peace and privacy of their home, not in hospital
  • - Qualified palliative care nurses
  • - Respite services, day and night
  • - Transport to medical appointments
  • - Family support after death
  • - Comfort care, day and night
  • Private services in support of CLSC care
  • Financial support for special needs: medications, assistance at meals, etc.

The foundation ensures access to quality private complementary services.
This is a partnership where quality of life comes first – for the patient, and for their loved ones. A partnership that’s flexible and effective, thanks to cooperation and high standards among all those involved: CLSC teams, foundation volunteers and staff from private nursing agencies and caregiver services. The patient’s comfort and well-being matter to us all, including support for the family, until the end – and even after.

Access to palliative home care

The Fondation Jacques-Bouchard works in partnership with CLSCs. They are the foundation’s key partners at present. In areas where palliative care for residents is adequate but not comprehensive, the foundation supports local caregiving teams by providing complementary high-quality services. This approach ensures fully integrated patient management and promotes access to palliative home care within the healthcare system.

Support research

Research is crucial. We still need to know more about how to provide better care for patients in the terminal phase of illness, and what can be done to ensure better training for caregivers.
Dr. Serge Daneault, a teacher, researcher and specialist in home palliative care, has launched various projects with his team to study these very aspects of palliative care. Here are some of the questions he hopes to answer:

- How do we know what suffering means to those afflicted with terminal illness, and what are its sources?
- How can healthcare services treat suffering of this sort?
- Where does palliative care have a place, and when exactly should it begin?
- The seriously ill live on hope. How should we sustain it?
- If hope is the most important thing to preserve for a patient, what is its role in making decisions about treatment?
- Can hope aggravate the suffering of those who are seriously ill?
- How is it that Quebec is one of the Western societies where it is most difficult for anyone who is terminally ill to die at home?
- What correctives should be made to the healthcare system in order to remedy this situation?
- What policy should be adopted instead?
- What changes need to be made?

“Suffering is something that’s very explosive, but also very, very fragile. We must go slowly…and leave people a chance to open the door.”
– Dr. Serge Daneault, author of Souffrance et médecine [Suffering and Medicine] (Presses de l’Université du Québec, 2006) and co-author of Vivre jusqu’au bout [Living out life to the end] (Bayard Canada, 2010).